BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//BioCT - ECPv6.17.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:BioCT
X-ORIGINAL-URL:https://bioct.org
X-WR-CALDESC:Events for BioCT
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250923T070000
DTEND;TZID=America/New_York:20250923T093000
DTSTAMP:20250922T222659Z
CREATED:20250922T222453Z
LAST-MODIFIED:20250922T222659Z
UID:10002908-1758610800-1758619800@bioct.org
SUMMARY:Advancing Rare Disease Healthcare: Spotlighting the Economic and Health System Burden of Disease - Hosted by Alexion\, AstraZeneca Rare Disease
DESCRIPTION:The virtual global webinar will be held live on Sept 23 with two available session times:\n• Session 1: 07:00 EDT | 13:00 CEST | 15:00 GST\n• Session 2: 11:30 EDT | 17:30 CEST | 19:30 GST\n\n\nPlease join this 1.5-hour live virtual meeting to hear esteemed faculty describe the global economic impact of rare diseases on patients and healthcare systems. Expert community advocates will also share their practical experience of advancing patients’ needs with key stakeholders. Panel discussion and audience questions will consider how to have meaningful impact in your country or region with patient healthcare experience data and insights to drive change in practice and better health outcomes for people living with rare disease. The live virtual meeting is further supplemented with published studies and content.\n\nThe agenda\n\n\nTo register\, please enter your email in the “Register now” box. You will then be asked to complete a short form where you can select which time you would like to attend. Once successfully registered\, you will receive a confirmation email. Please check your junk or spam folders if you do not see it in your inbox.
URL:https://bioct.org/event/advancing-rare-disease-healthcare-spotlighting-the-economic-and-health-system-burden-of-disease-hosted-by-alexion-astrazeneca-rare-disease/
LOCATION:VIRTUAL
END:VEVENT
END:VCALENDAR