Submit your event listing via our News & Events Submission Form.
- This event has passed.
Advancing Rare Disease Healthcare: Spotlighting the Economic and Health System Burden of Disease – Hosted by Alexion, AstraZeneca Rare Disease
September 23 @ 7:00 am - 9:30 am
The virtual global webinar will be held live on Sept 23 with two available session times:
• Session 1: 07:00 EDT | 13:00 CEST | 15:00 GST
• Session 2: 11:30 EDT | 17:30 CEST | 19:30 GST
Please join this 1.5-hour live virtual meeting to hear esteemed faculty describe the global economic impact of rare diseases on patients and healthcare systems. Expert community advocates will also share their practical experience of advancing patients’ needs with key stakeholders. Panel discussion and audience questions will consider how to have meaningful impact in your country or region with patient healthcare experience data and insights to drive change in practice and better health outcomes for people living with rare disease. The live virtual meeting is further supplemented with published studies and content.
The agenda

To register, please enter your email in the “Register now” box. You will then be asked to complete a short form where you can select which time you would like to attend. Once successfully registered, you will receive a confirmation email. Please check your junk or spam folders if you do not see it in your inbox.
Have an event to share?
We want to help you spread the word! Submit your event listing via our News & Events Submission Form.